The All of Us Research Program officially opens for enrollment Sunday, May 6. Led by the National Institutes of Health (NIH), All of Us is an unprecedented effort to gather genetic, biological, environmental, health and lifestyle data from 1 million or more volunteer participants living in the U.S. A major component of the federal Precision Medicine Initiative, the program’s ultimate goal is to accelerate research and improve health.
About the All of Us study
Congress has authorized $1.455 billion over 10 years for the All of Us research study. More than 25,000 people nationwide have already joined the program as part of a yearlong beta testing phase that helped shape the participant experience.
Unlike research studies that are focused on a specific disease or population, All of Us will serve as a national research resource to inform thousands of studies, covering a wide variety of health conditions.
Researchers will be able to access data from the program to learn more about how individual differences in lifestyle, environment and biological makeup can influence health and disease. Participants will be able to access their own health information, summary data about the entire participant community and information about studies and findings that come from All of Us.
How to participate at UC Davis
UC Davis is one of five leading academic health centers in California that are members of the California Precision Medicine Consortium, which was established to implement the All of Us Research Program. Other consortium members include UC San Francisco, Keck School of Medicine of the University of Southern California and Cedars-Sinai Medical Center.
- Participants will be asked to share different types of health and lifestyle information, including through online surveys and electronic health records. This information will continue to be collected over the course of the program. Participants will review and sign the informed consent, review and sign the medical record release, and answer a few, short surveys.
- At different times over the coming months and years, some participants will be asked to visit a local partner site to provide blood and urine samples and to have basic physical measurements taken, such as height and weight.
To ensure that the program gathers information from all types of people, especially those who have been underrepresented in research, not everyone will be asked to give physical measures and samples. In the future, participants may be invited to share data through wearable devices and to join follow-up research studies, including clinical trials. Also in future phases of the program, children will be able to enroll, and the program will add more data types, such as genetic data.
Data from the program will be broadly accessible for research purposes. Ultimately, the All of Us Research program will be a rich and open data resource for traditional academic researchers as well as citizen scientists — and everyone in between.